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Diabetes-Johanna

Family Life with diabetes, twins and babysister with ultra rare Pitt-Hopkins syndrome. How does it all come together?

Boyce Avenue "Only girl"

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March 01, 2016

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I love someone rare with Pitt-Hopkins syndrome

28 februari 2018 - Rare Disease Day

Labels

#MeToo2
Anhöriga6
Barn med behov63
Barnhabiliteringen6
Diabetes265
Ekonomi3
Enlingen51
Graviditet40
Hus79
Kris i livet37

Master10
MFF24
Pitt-Hopkins syndrome25
Resa10
Shoppaholic40
Socionomen44
Stugan17
Syjunta21
Trädgårdsprojektet3
Träning52
Tvillingar - tips8
Tvillingarna203
Tvillinggraviditet74
White wedding7

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Super-Johanna

2003 - Moved to my own apartment
2003 - Diabetes type 1 diagnosis
2008 - Studying social work science
2009 - Met David ♥
2011 - Finished my degree
2011 - Aussie Rules IC in Australia
2012 - Pregnant with identical twins
2012 - First house
2013 - 3/1 twin girls were born ♥♥
2013 - Got engaged in London 1/9
2014 - Pregnant with babysister
2015 - 28/8 babysister was born ♥
2015 - New house, new town
2017 - Frejas Pitt-Hopkins diagnosis

Shortenings

BS - Blood sugar
Hab - Child habilitation institute
HbA1c - Test avarage blood sugar
NPF - Neuropsykiatric function deficit
PTHS - Pitt-Hopkins syndrome

HbA1c

2017-01-12 HbA1c 52
2016-04-16 HbA1c 55

HbA1c translator

A healthy person should have between 3-5,5 blood sugar level while they would like diabetics to be below 6.

Michael McIntyre "People with no kids don't know"

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Boyce Avenue "Only girl"

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